Well-being in amyotrophic lateral sclerosis: a pilot experience sampling study
Real, Ruben G. L.
Frontiers in Psychology ; 5 (2014). - Art.-Nr. 704. - eISSN 1664-1078
Link to original publicationhttps://dx.doi.org/10.3389/fpsyg.2014.00704
InstitutionsUKU. Klinik für Neurologie
Document versionpublished version (publisher's PDF)
Objective: The aim of this longitudinal study was to identify predictors of instantaneous well-being in patients with amyotrophic lateral sclerosis (ALS). Based on flow theory well-being was expected to be highest when perceived demands and perceived control were in balance, and that thinking about the past would be a risk factor for rumination which would in turn reduce well-being. Methods: Using the experience sampling method, data on current activities, associated aspects of perceived demands, control, and well-being were collected from 10 patients with ALS three times a day for two weeks. Results: Results show that perceived control was uniformly and positively associated with well-being, but that demands were only positively associated with well-being when they were perceived as controllable. Mediation analysis confirmed thinking about the past, but not thinking about the future, to be a risk factor for rumination and reduced well-being. Discussion: Findings extend our knowledge of factors contributing to well-being in ALS as not only perceived control but also perceived demands can contribute to well-being. They further show that a focus on present experiences might contribute to increased well-being.
Subject headings[GND]: Myatrophische Lateralsklerose | Bewältigung | Wohlbefinden
[MeSH]: Amyotrophic lateral sclerosis; Psychology
[Free subject headings]: ALS | coping | well-being | experience sampling | ESM | reminiscence | rumination
[DDC subject group]: DDC 150 / Psychology
LicenseCC BY 3.0
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DOI & citation
Please use this identifier to cite or link to this item: http://dx.doi.org/10.18725/OPARU-38965